Disclaimer:
This list of resources has been compiled by the apraxia community, for the apraxia community. Apraxia Kids does not endorse any one school, camp, book, method, program, organization, service, or approach over another. Rather, we share information so families & professionals can make informed choices for children with CAS as they work to find their voices.
AAC Institute
https://aacinstitute.org/
412-489-5527
AAC Institute is a resource for all who are interested in enhancing the communication of people who rely on AAC (augmentative and alternative communication). AAC Institute, a nonprofit, offers information and provides services worldwide. AAC Institute promotes the goal of AAC, the AAC Rules of Commitment, and evidence-based AAC clinical practice. This mission is accomplished through service delivery, research, activity organization, information dissemination, and education.
Everyone Communicates: The Augmentative and Alternative Communication (AAC) Resource
http://everyonecommunicates.org/index.html
As their name indicates, they believe that everyone communicates, in one way or another. They also believe that communication is a basic need in life. When an individual does not have fluent, natural speech, it is urgent that other methods of communication, often called augmentative or alternative communication (AAC), be explored exhaustively. This website is a great resource for the AAC journey.
PrAACtical AAC
https://praacticalaac.org/
PrAACtical AAC supports a community of professionals and families who are determined to improve the communication and literacy abilities of people with significant communication difficulties. It was founded in 2011 by two SLP professors around a shared passion for AAC.
Small Steps in Speech
https://www.smallstepsinspeech.org/
info@smallstepsinspeech.org; apply@smallstepsinspeech.org | 1-888-SPEAK (1-888-577-3256)
Small Steps in Speech is a non-profit foundation created in memory and in honor of Staff Sgt Marc J. Small. Small Steps in Speech assists children with speech and language disorders by funding supplemental therapies and treatments for individuals. The mission of Small Steps in Speech is to help children with speech and/or language disorders take the steps needed to be better communicators; to give children the chance to better express themselves in the world.
AAC Strategies for Apraxia
https://www.apraxia-kids.org/webinar_library/aac-strategies-for-apraxia/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
CHADD (Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
https://chadd.org/
customer_service@chadd.org | 301-306-7070
CHADD empowers people affected by ADHD by providing evidence-based information; supporting individuals, their families, and professionals who assist them throughout their journeys; and advocating for equity, inclusion, and universal rights. Resources include a science-based web resource on ADHD, fact sheets and infographics, ADHD Helpline, digital resources like videos and podcasts, newsletters, ADHD Toolkits, opportunities for connection, and more.
Greater National Advocates
https://gnanow.org/
1-888-GNA-NOW1
Greater National Advocates is a non-profit determined to improve the patient experience. Their public service mission is to spread the word about the life-saving benefits of Independent Patient Advocacy and make advocacy services available to everyone at GNANOW.ORG. Independent Patient Advocates provide guidance and support for patients and loved ones struggling to manage a healthcare-related problem or medical crisis. These dedicated professionals are not employed by hospitals or insurance companies, meaning they are free from the constraints and restrictions that often limit the availability of resources.
Native American Disability Law Center
https://www.nativedisabilitylaw.org/about-us/what-we-do
info@nativedisabilitylaw.org | 800-862-7271
The Native American Disability Law Center provides advocacy, referral information, and educational resources to all Native Americans with a disability living anywhere in the Four Corners area who feels that they have been discriminated against because of their disability, abused or neglected, or wrongly denied a service. The Law Center can help through information and referrals, legal representation, systems advocacy, and training.
The Council of Parent Attorneys and Advocates, Inc. (COPAA)
https://www.copaa.org/
The Council of Parent Attorneys and Advocates, Inc. (COPAA) is an independent, nonprofit organization of attorneys, advocates, parents, and related professionals. COPAA members work to protect the legal and civil rights of and secure excellence in education on behalf of tens of thousands of students with disabilities and their families each year at the national, state, and local levels. COPAA specifically works to empower marginalized groups to realize a quality education that will open doors and allow students and families to make active improvements in their lives.
Wrightslaw
https://www.wrightslaw.com/
Wrightslaw is an in-depth online resource about a wide range of special education and advocacy topics and laws.
National Aphasia Association (NAA)
https://aphasia.org/
The National Aphasia Association (NAA) is a non-profit organization founded dedicated to advocating for persons with aphasia and their families. Several board members are people with aphasia or family members. Their goal is to provide access to research, education, rehabilitation, therapeutic and advocacy services to individuals with aphasia and their caregivers. The NAA acts as a syndicate of resources, promoting sense of community among individuals and caregivers.
The Aphasia Library
https://www.aphasia.com/
The Aphasia Library has resources and information on the causes, symptoms, and treatments of aphasia as well as the different types of aphasia, conditions related to aphasia, and information for caregivers of people with aphasia.
The Aphasia Project
https://www.aphasiaproject.org/
The Aphasia Project is the only community-based program in North Carolina offering lifelong, affordable support for individuals with aphasia. At present, they provide 30+ weekly conversation groups, both in-person and virtual, where participants can practice communication skills, build confidence, and connect with others in a small, supportive setting. These groups are led by licensed speech-language pathologists and foster ongoing peer support. TAP also supports families through our virtual monthly training program, ‘Learning to Speak Aphasia,’ and virtual support groups. Beyond this, TAP raises awareness of aphasia by educating healthcare professionals and community members to better serve affected individuals.
ARFID Collaborative
https://www.arfidcollaborative.com/arfid-101
ARFID Collective is a group of dedicated clinicians, serving family members, caregivers, providers, and individuals of all ages with ARFID, by helping to better address the unique needs of this underserved population.
Feeding Matters
https://www.feedingmatters.org/
info@feedingmatters.org | 800-233-4658
Feeding Matters is the first organization in the world uniting the concerns of families with the field’s leading advocates, experts, and allied healthcare professionals to improve the system of care for pediatric feeding disorder through advocacy, education, support, and research. Feeding Matters’ mission is to further advances in pediatric feeding disorder by accelerating identification, igniting research, and promoting collaborative care for children and families.
National Alliance for Eating Disorders
https://www.allianceforeatingdisorders.com/avoidant-restrictive-food-intake-disorder-arfid/
info@allianceforeatingdisorders.com | 866-662-1235
The National Alliance for Eating Disorders is the leading national nonprofit organization providing referrals, education, and support for all individuals experiencing eating disorders and their loved ones. The Alliance offers comprehensive services, including: Free, therapist-staffed helpline offering support and referrals to all levels of care; Comprehensive and interactive referral website and app, findEDhelp.com; Free, weekly, therapist-led support groups nationwide (virtual and in-person) for those experiencing eating disorders and for their loved ones; Educational presentations and training days; and more.
Association for Autism and Neurodiversity (AANE)
https://aane.org/
info@aane.org | 617-393-3824
The Association for Autism and Neurodiversity (AANE)’s mission is to help Autistic and similarly Neurodivergent people build meaningful, connected lives. AANE provides individuals, families, and professionals with education, community and support, in an inclusive atmosphere of validation and respect.
Autism Society
https://autismsociety.org/
info@autism-society.org | 1 800-328-8476
For 58 years and counting, the Autism Society, including a nationwide network of affiliates, connects people to the resources they need through education, advocacy, support, information and referral, and community programming.
Autistic Self Advocacy Network (ASAN)
https://autisticadvocacy.org/
info@autisticadvocacy.org
The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement with regard to autism. ASAN believes that the goal of autism advocacy should be a world in which autistic people enjoy equal access, rights, and opportunities. We work to empower autistic people across the world to take control of our own lives and the future of our common community, and seek to organize the autistic community to ensure our voices are heard in the national conversation about us. Nothing About Us, Without Us!
National Autism Association
https://nationalautismassociation.org/
naa@nationalautism.org | 877-622-2884
National Autism Association is a parent-run non-profit organization and the leading voice on urgent issues related to severe autism, regressive autism, autism safety, autism abuse, and crisis prevention. National Autism Association provides direct assistance to caregivers, educators, and first responders.
The Color of Autism
https://thecolorofautism.org/
info@thecolorofautism.org | 313-444-9035
As a National US Based Neuro-Affirming Non-Profit 501(c)3 organization, The Color of Autism is deeply committed to fostering inclusivity and support for African American families navigating the world of autism. Their belief in inclusion by design guides their efforts to provide education and assistance to families, ensuring that no one is left behind in accessing crucial resources and understanding.
Could It Be Both? Distinguishing Between Autism and Childhood Apraxia of Speech
https://parent.apraxia-kids.org/could-it-be-both-distinguishing-between-autism-and-childhood-apraxia-of-speech/
Learn more from this article from the Apraxia Kids Parent Portal.
Working Through Oppositional Behaviors in Therapy for Childhood Apraxia of Speech
https://www.apraxia-kids.org/webinar_library/working-through-oppositional-behaviors-in-therapy-for-childhood-apraxia-of-speech/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
Bilinguals with CAS: You’ve Got This
https://www.apraxia-kids.org/bilinguals-with-cas-youve-got-this/
Learn more from this free webinar in the Apraxia Kids Virtual Education Series.
Cerebral Palsy Family Network (CPFN)
https://cpfamilynetwork.org/
families@cpfamilynetwork.org | 1-866-815-9031
Cerebral Palsy Family Network (CPFN) is the world’s largest online community for connecting and supporting families like theirs.
Cerebral Palsy Guide
https://www.cerebralpalsyguide.com/
866-845-8124
Cerebral Palsy Guide provides free educational materials, financial resources, and support options for families affected by this condition and other birth injuries. This guide can connect families to medical information, support options, and legal aid.
United Cerebral Palsy
https://ucp.org/
info@ucp.org | 800-872-5827
United Cerebral Palsy promotes the independence and inclusion of people with cerebral palsy, intellectual, developmental, and other disabilities through our network of affiliates and partnerships. Services include information and resource referral, advocacy, research, educational instruction, home- and community-based services, early intervention therapies, job coaching, integrated employment support, recreational opportunities, and community-based residential programs.
American Cleft Palate Craniofacial Association (ACPA)
https://acpacares.org/
919-933-9044
Children born with cleft lip, cleft palate, and/or other craniofacial differences may require individualized treatment into adulthood. Their care is best managed when a team of specialists works with the family to develop and follow a treatment plan. ACPA is dedicated to team care and to optimizing outcomes for patients.
Smile Train
https://www.smiletrain.org/patients-families/speech-services
800-932-9541
Smile Train is the world’s largest cleft-focused organization, with a sustainable and local model of supporting surgery and other forms of essential care. Over the last 25+ years, Smile Train has supported safe, high-quality, and free cleft care for 2+ million children and will continue to do so until every child in need with a cleft has access to the care they deserve.
What if it’s More?: When Cognitive and Learning Issues Co-Occur with Childhood Apraxia of Speech
https://www.apraxia-kids.org/webinar_library/what-if-its-more-when-cognitive-and-learning-issues-cooccur-with-childhood-apraxia-of-speech/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
Lecture Series: Identifying CAS and Comorbid Challenges
https://www.apraxia-kids.org/webinar_library/identifying-cas-and-comorbid-challenges/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
Lecture Series: Treatment Strategies for CAS and Comorbid Challenges
https://www.apraxia-kids.org/webinar_library/treatment-strategies-for-cas-and-comorbid-challenges/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
Virtual Education Series: Co-Occurring Diagnosis Track
https://www.apraxia-kids.org/virtual-education-series/comorbidity-2/
Learn more from this free webinar in the Apraxia Kids Virtual Education Series.
Bright Futures at Georgetown University
https://www.brightfutures.org/physicalactivity/issues_concerns/10.html
Read more from “Bright Futures at Georgetown University” on DCD and suggested physical activity accommodations.
CanChild – DCD Information
https://canchild.ca/en/diagnoses/developmental-coordination-disorder
From CanChild – Centre for Childhood Disability Research. Use the navigation bar at the top of the window to learn more about assessment and diagnosis, cause and identification, management, related disorders, and more about DCD.
Dyspraxia DCD America
https://www.dyspraxiadcdamerica.org/
800-890-9088
Dyspraxia DCD America (formerly The Spotlight Foundation for Dyspraxia and DCD) is committed to being a resource for those living with Dyspraxia/DCD, and dedicated to raising awareness, providing resources to families and individuals, educating the medical and educational communities, and supporting research.
Dyspraxia Foundation USA
https://dyspraxiausa.org/
foundation@mail.dyspraxiausa.org | 630-335-3327
Dyspraxia USA works to raise awareness and educate people about diagnosis, treatment, and resources to improve the quality of life for people with Dyspraxia and their families.
DysTalk on YouTube
https://www.youtube.com/@dystalk/featured
Videos on how to help children with DCD/Dyspraxia.
Dyspraxia DCD Ireland
https://www.dyspraxia.ie/
Dyspraxia/DCD Ireland was established as The Dyspraxia Association of Ireland in 1995 by parents and family members of children with dyspraxia/DCD. The organisation delivers a range of supports and services to young people and adults with dyspraxia/DCD and their families and supporters, and work with a broad range of professionals such as teachers, psychologists, occupational therapists, mental health professionals, and employers who support people with dyspraxia/DCD.
DLD and Me
https://www.dldandme.org/resources
DLDandMe is a volunteer organization created to enhance understanding of developmental language disorder (DLD) and to offer support and resources for people impacted by DLD. They also offer brief posts summarizing current evidence a on DLD.
RADLD (Raising Awareness of Developmental Language Disorder)
https://radld.org/
RADLD.ORG was created to Raise Awareness of Developmental Language Disorder or ‘DLD’. The site provides resources that explain what DLD is, the impact it can have, how to get help, and how to raise awareness.
The DLD Project Foundation
https://thedldproject.com/families/resources-for-families/
hello@thedldprojectfoundation.org.au
The DLD Project Foundation aims to be the peak Developmental Language Disorder (DLD) body in Australia whose principal activity is to support individuals with DLD and their families in order to reduce the impact of this hidden disability. We are committed to improving the lives of adults and children with DLD, their families, and carers; and to improve community awareness, acceptance and understanding of DLD. We will work closely with our members and the extended DLD community to advocate for equity and fairness.
Down Syndrome International
https://ds-int.org/what-we-do/
Down Syndrome International is a global network of people with Down syndrome and other disabilities, their friends and family members, professionals, and organisations from around the world. The people in our network tell us about life for people with Down syndrome in different parts of the world. We gather evidence and examples of good practice to understand what needs to change. Then, together we speak up for the human rights of all people with Down syndrome around the world. We have a stronger voice when we work together.
Down Syndrome Resource Foundation (DSRF)
https://www.dsrf.org/
info@dsrf.org | 604-444- 3773
Down Syndrome Resource Foundation (DSRF) offers a wide variety of programs, services, and resources for individuals with Down syndrome of all ages and their families. DSRF is a one-stop-shop for Down syndrome, or as one parent put it, “a boutique of supporting our son for success.” “At DSRF, we are proactive, evolving our programming and services based on our experiences working with clients and students, and the latest research and best practices. We take an individualized approach, tailoring our lessons to each person’s strengths, interests, and needs. As a result, students are empowered. They have opportunities to grow, learn, and step into whatever success means to them.”
GiGi’s Playhouse – Down Syndrome Achievement Centers
https://gigisplayhouse.org/
info@gigisplayhouse.org | 847-885-6149
With over 58+ brick-and-mortar locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the only network of Down Syndrome Achievement Centers. Every day, they provide free, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages.
Global Down Syndrome Foundation
https://www.globaldownsyndrome.org/
info@globaldownsyndrome.org | 303-321-6277
The Global Down Syndrome Foundation is a public non-profit dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education, and Advocacy. Programs and Events give self-advocates an opportunity to prosper and flourish through access to excellent camps and programs, opportunities to meet celebrities and Congressional leaders, and fundraise for research and medical care.
LuMind IDSC Foundation
https://lumindidsc.org/
LuMindIDSC@LuMindIDSC.org | 781-825-1300
The LuMind IDSC community is committed to connecting individuals with Down syndrome and their families to resources, expertise, education, and each other, online and in person.
National Down Syndrome Congress (NDSC)
https://www.ndsccenter.org/
info@ndsccenter.org | 800-232-NDSC 6372)
The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, NDSC is the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of diagnosis, whether prenatal or at birth, through adulthood.
National Down Syndrome Society (NDSS)
https://ndss.org/
800-221-4602
National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. The organization’s work is achieved through three key areas of programming: Resources & Support, Advocacy & Policy, and Community Engagement (The Buddy Walk® , Down Syndrome Advocacy Conference).
Dealing with Dysarthria and Childhood Apraxia of Speech
https://www.apraxia-kids.org/webinar_library/sdealing-with-dysarthria-and-childhood-apraxia-of-speech/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
Speech Treatment For Childhood Dysarthria
https://www.apraxia-kids.org/webinar_library/speech-treatment-for-childhood-dysarthria/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
American Dyslexia Association
https://www.american-dyslexia-association.org/Dyslexia.html
American Dyslexia Association provides free resources and information, as well as guidance for teachers, parents, and experts working with the Attention Function Symptom Method.
DyslexiaHelp
https://dyslexiahelp.umich.edu/
DyslexiaHelp is an online resource for families, professionals, people with dyslexia, and more. The goal is to provide pertinent, helpful information about the signs and symptoms of dyslexia, as well as appropriate testing, diagnosis, and intervention for children and teens with dyslexia.
International Dyslexia Association
https://dyslexiaida.org/in-your-area-with-global-partners/
info@dyslexiaida.org | 410-296-0232
The International Dyslexia Association, Inc. (IDA) is a nonprofit providing advocacy, resources, and services to teaching professionals, advocates, and individuals and families impacted by dyslexia and other related learning differences.
LD Online
https://www.ldonline.org/
LD OnLine is the leading website on learning disabilities and learning differences. Parents and teachers of children with learning disabilities will find supportive and authoritative guidance on attention deficit disorder, ADD / ADHD, dyslexia, dysgraphia, dyscalculia, reading difficulties, speech, and related disorders.
Made By Dyslexia
https://www.madebydyslexia.org/
info@madebydyslexia.org
Made By Dyslexia is a global charity led by successful dyslexics. We are the world’s largest community of dyslexic people and their allies.
The Dyslexia Foundation
https://dyslexiafoundation.org/
The Dyslexia Foundation brings together leading scientists from important fields in dyslexia research, while working to create a bridge between research and practice. They facilitate and disseminate scientific breakthroughs and advances in dyslexia through collaboration among neuroscientists, cognitive scientists, geneticists, and practitioners.
Yale Center for Dyslexia & Creativity (YCDC)
https://dyslexia.yale.edu/
dyslexia@yale.edu
The Yale Center for Dyslexia & Creativity (YCDC) is the preeminent source of cutting-edge research, informed advocacy, and trustworthy resources to help those with dyslexia reach their full potential. Through research and advocacy work, YCDC conducts studies and builds awareness about dyslexia. They mobilize grassroots efforts to narrow the reading achievement gap for all students, including low-income students of color, through policies that help dyslexic children succeed.
JAN (Job Accommodation Network)
https://askjan.org/
JAN helps employers recognize the valuable contributions that qualified workers with disabilities add to the workforce by providing job accommodation solutions, trusted interactive process strategies, and practical guidance on Title I of the Americans with Disabilities Act (ADA). Job accommodations play a vital role in increasing employment opportunities for people with disabilities.
Cure Epilepsy
https://www.cureepilepsy.org/
844-231-2873
CURE Epilepsy is the leading nonprofit epilepsy research organization investing in unmet research needs and setting in motion groundbreaking advances that will lead to a cure.
Epilepsy Alliance America
https://www.epilepsyallianceamerica.org/
admin@epilepsyallianceamerica.org | 1-800-642-0500
Epilepsy Alliance America is a growing national organization representing like-minded local, regional, statewide, and even other national agencies dedicated to serving the everyday needs of people who live with seizures and epilepsy every day.
Epilepsy Foundation
https://www.epilepsy.com/
1-800-332-1000
The Epilepsy Foundation partners with regional organizations nationwide to provide the care, advocacy, research, and education needed to fulfill its mission and mobilize action together to address the challenges of living with epilepsy. They strive to provide members of the media with the most up to date and relevant information about epilepsy and seizures, including the latest research on therapies and devices, to help the more than 3.4 million people in the United States, and 65 million in the world, who live with epilepsy and seizures.
Epilepsy Information and Resources
https://www.apraxia-kids.org/apraxia_kids_library/epilepsy-and-seizure-links/
Learn more from this article from the Apraxia Kids Article Library.
Child Neurology Foundation
https://www.childneurologyfoundation.org/
Child Neurology Foundation is committed to helping children and their families living with a neurologic condition receive the best quality of care — and achieve their highest quality of life — by providing information, education, and one-on-one support when it’s needed most. Search the Child Neurology Disorder Directory to learn more about treatment, prognosis, and research opportunities for a range of neurologic conditions to help you make an informed decision on care.
DDX3X Foundation
https://ddx3x.org/
info@ddx3x.org
DDX3X Foundation’s mission is to connect families, resources, and the medical community to advance research for a treatment or cure to DDX3X Syndrome; the ultimate goal is to accelerate brain function in individuals affected by DDX3X Syndrome through advances in cell and gene therapy and pharmaceuticals.
National Fragile X Foundation
https://fragilex.org/
contact@fragilex.org | 800-688-8765
The National Fragile X Foundation serves all those living with Fragile X with a focus on community, awareness, and research in the pursuit of treatments and a cure. Fragile X syndrome is the most common inherited intellectual and developmental disability. An estimated 1.5 million Americans have the gene premutation, and an estimated 100,000 Americans have Fragile X syndrome.
Genetic Alliance
https://geneticalliance.org/resources-and-information
Info@geneticalliance.org | 202-966-5557
Genetic Alliance, a non-profit organization founded in 1986, is a leader in deploying high tech and high touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health.
Global Genes
https://globalgenes.org/
Global Genes is known as an umbrella non-profit patient advocacy organization in rare disease. Global Genes provides educational tools, events, information, and resources; access to experts and one to one support help to the rare disease advocates who need them; RARE Concierge patient service guides to help you navigate the complicated world of rare and undiagnosed diseases; and more, all available to patients and advocates at little to no cost.
The Genetic Bases of CAS: A Clinical and Parent Perspective
https://www.apraxia-kids.org/webinar_library/the-genetic-bases-of-cas-a-clinical-and-parent-perspective/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
Deaf Latinos y Familias
https://deaflatinosyfamilias.org/
deaflatinosorganization@gmail.com | 323-920-6761
We work with Latinx families with children who are Deaf or Hard of Hearing, Deaf Adults, and non-verbal, as we integrate family history, traditions, and values into their lives to bridge the gap between two different cultures/languages/worlds. We are a family oriented organization ran for parents by parents.
Hearing Loss Association of America (HLAA)
https://www.hearingloss.org/find-help/
inquiries@hearingloss.org | 301-657-2248
Hearing Loss Association of America (HLAA) is building a hearing health movement empowering millions with, and at risk of, hearing loss to thrive through education, advocacy and a nationwide network of support.
National Association of the Deaf
https://www.nad.org/
nad.info@nad.org
Videophone:
301-587-1788 (Purple/ZVRS)
301-328-1443 (Sorenson)
301-338-6380 (Convo)
TTY: 301-810-3182
The National Association of the Deaf (NAD) is the nation’s premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value.
Childhood Apraxia of Speech and Hearing Loss
https://www.apraxia-kids.org/webinar_library/childhood-apraxia-of-speech-and-hearing-loss/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
PATH International (Professional Association of Therapeutic Horsemanship)
https://pathintl.org/find-a-program/
800-369-7433
Professional Association of Therapeutic Horsemanship International (PATH Intl.) is committed to the advancement of equine-assisted services for lifelong impact. PATH leads the advancement of professional equine-assisted services by supporting members and stakeholders through rigorously developed standards, credentialing, and education.
Easterseals
https://www.easterseals.com/
info@easterseals.com | 800-221-6827
Easterseals has a large national network of affiliates that provide essential services and on-the-ground supports to more than 1.5 million people each year — from early childhood programs for the critical first five years, to autism services, to medical rehabilitation and employment programs, to veterans’ services, and more. Children and adults with disabilities, families, and communities find high-quality services designed to meet their needs when they come to Easterseals.
The Arc
https://thearc.org/
202-534-3700
The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. The Arc is the world’s largest community-based organization for people with intellectual and developmental disabilities (IDD), such as autism, Down syndrome, cerebral palsy, and fetal alcohol spectrum disorders. The Arc is your source for background information, on-the-record perspective on national topics and trends, and firsthand insight into disability rights and supports. Arc staff are nationally recognized experts on: public policy and government systems, civil rights, community living, special education, employment, assistive technology, and much more.
Invisible Disabilities Association
https://invisibledisabilities.org/
The Invisible Disabilities® Association (IDA) is a nonprofit about believing. We believe you! The frequently invisible nature of illness and pain may lead to disbelief about that illness or pain by those surrounding the person who lives daily with invisible disabilities. We are passionate about providing awareness that invisible illness, pain and disabilities are very real! Our mission is to encourage, educate, and connect people and organizations touched by illness, pain and disability around the globe through our programs, events, and resources.
Sunflower Foundation
https://hdsunflower.com/
The Hidden Disabilities Sunflower is a simple tool for you to voluntarily share that you have a disability or condition that may not be immediately apparent – and that you may need a helping hand, understanding, or more time in shops, at work, on transport, or in public spaces.
Learning Disability Association of America
https://ldaamerica.org/
info@LDAAmerica.org | 412-341-1515
LDA’s mission is to create opportunities for success for all individuals affected by learning disabilities through support, education, and advocacy.
National Center for Learning Disabilities – NCLD
https://ncld.org/
NCLD (National Center for Learning Disabilities) provides resources for parents and caregivers, young adults, educators, allies, and advocates. NCLD also provides annual scholarships and awards to celebrate the work and achievements of students and leaders working to create more equitable futures for those with learning disabilities and attention issues.
Childhood Apraxia of Speech and Literacy Problems
https://parent.apraxia-kids.org/childhood-apraxia-of-speech-and-literacy-problems/
Learn more from this article from the Apraxia Kids Parent Portal.
Children with Apraxia and Reading, Writing, and Spelling Difficulties
https://www.apraxia-kids.org/apraxia_kids_library/children-with-apraxia-and-reading-writing-and-spelling-difficulties/
Learn more from this article from the Apraxia Kids Article Library.
Language Processing and Comprehension Issues and Children with CAS
https://parent.apraxia-kids.org/language-processing-and-comprehension-issues-and-children-with-cas/
Learn more from this article from the Apraxia Kids Parent Portal.
Reading Disorders 101: A Tutorial for Parents and Related Professionals
https://www.apraxia-kids.org/webinar_library/reading-disorders-101-a-tutorial-for-parents-and-related-professionals/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
Supporting Literacy in Children with Childhood Apraxia of Speech: Techniques for Clinicians and Parents
https://www.apraxia-kids.org/webinar_library/supporting-literacy-in-children-with-childhood-apraxia-of-speech-techniques-for-clinicians-and-parents/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
The Language-Based Literacy Assessment: Diagnosing Reading Disorders in Children with Childhood Apraxia of Speech (CAS)
https://www.apraxia-kids.org/webinar_library/the-language-based-literacy-assessment-diagnosing-reading-disorders-in-children-with-childhood-apraxia-of-speech-cas/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
Why Some Children Hate to Write
https://parent.apraxia-kids.org/why-some-children-hate-to-write/
Learn more from this article from the Apraxia Kids Parent Portal.
988 Lifeline
https://988lifeline.org/
Helpline: 988
The 988 Lifeline is for everyone. Through the 988 Lifeline, you have access to free, quality, one-on-one assistance. Our skilled, judgment-free counselors are here to provide compassionate support. You deserve to feel heard and cared about anytime, anywhere, 24/7/365.
Anxiety and Depression Association of America (ADAA)
https://adaa.org/
ADAA improves the quality of life through evidence-based educational resources, professional practice, and scientific research. ADAA brings together mental health professionals who lend their time and expertise to improve patient care by promoting the implementation of best practices and treatments across disciplines through continuing education and training and accelerating dissemination of research into practice. ADAA is a nonpartisan, nonpolitical organization that is data or evidence driven in its mission to be a resource for information preventing, treating, and curing anxiety, depression, PTSD, OCD, and co-occurring mental health disorders.
Child Mind Institute
https://childmind.org/
info@childmind.org
Child Mind Institute is the leading non-profit in children’s mental health. This organization operates on three mission areas: Care, Education, and Science. They provide family resources and even offer resources on Back to School.
Frances and Kenneth Eisenberg and Family Depression Center
https://depressioncenter.org/outreach-education
Frances and Kenneth Eisenberg and Family Depression Center, established in 2001, is the first of its kind devoted entirely to bringing depression into the mainstream of research, care, community education, and public discourse. Today, the Center is expanding the scope of mental health research in order to accelerate innovations that lead to improved outcomes across our communities. The Depression Center Toolkit provides information, tools, support, and resources to help individuals and families struggling with depression, anxiety or other mental health conditions. The Peer-to-Peer Depression Awareness Program is an evidence-based initiative that helps students launch creative mental health education campaigns to raise awareness and encourage help-seeking within schools.
Mental Health America
https://mhanational.org/youth-mental-health/
Mental Health America is a non-profit that promotes mental health as a critical part of overall wellness, including prevention services for all. This organization works to provide helpful resources that may help prevent a child from having mental health problems. Their resources aid parents and caregivers to recognize the signs that your child may be experiencing mental help problems.
National Alliance on Mental Illness (NAMI)
https://www.nami.org/
Helpline: 1-800-950-6264 or Text “helpline” to 62640
National Alliance on Mental Illness provides resources and helplines to educate, advocate, listen, and lead to improve the lives of people with mental illness and their loved ones. This organization offers resources for kids, teens, and adults who may be facing mental health symptoms as well as resources for family members and caregivers who are supporting those who develop mental health conditions. The NAMI HelpLine provides the one-on-one help and information necessary to tackle tough challenges that you, your family or friends are facing.
SAMHSA (Substance Abuse and Mental Health Services Administration)
https://www.samhsa.gov/
The Substance Abuse and Mental Health Services Administration (SAMHSA) is the agency within the U.S. Department of Health and Human Services that leads public health efforts to advance the behavioral health of the nation. SAMHSA envisions that people with, affected by, or at risk for mental health and substance use conditions receive care, achieve well-being, and thrive.
American Academy of Child & Adolescent Psychiatry (AACAP)
https://www.aacap.org/AACAP/Families_Youth/AACAP/Families_and_Youth/Home.aspx?hkey=fb0befff-aae9-4867-958b-d8b45f5ecb2f
AACAP Resource Centers empower consumers through patient education. Each AACAP Resource Center contains consumer-friendly definitions, answers to frequently asked questions, clinical resources, expert videos, and abstracts from JAACAP, Scientific Proceedings and Facts for Families relevant to each disorder. Resource topics include: Anxiety Disorders, ADHD, Autism, Bullying, Depression, Military Families, Moving into Adulthood, and more.
Mental Health Resources
https://parent.apraxia-kids.org/mental-health-resources/
Learn more from this article from the Apraxia Kids Parent Portal.
Mental Health Resources for our Apraxia Community
https://www.apraxia-kids.org/mental-health-resources-for-our-apraxia-community/
Learn more from this article from the Apraxia Kids Article Library.
Psychosocial Effects of CAS in Adolescents and Adults
https://parent.apraxia-kids.org/psychosocial-effects-of-cas-in-adolescents-and-adults/
Learn more from this article from on the Apraxia Kids Parent Portal.
The Neurodiversity Alliance
https://thendalliance.org/
The Neurodiversity Alliance, or “ND Alliance” for short, is the leading nonprofit organization founded by and for students who learn differently with the largest online community and national network of neurodiversity clubs in the country. Through the online community and mobile app, students can access the tools to launch neurodiversity clubs on their campuses, along with a variety of scholarships, leadership opportunities, and national events designed to build community, develop leadership skills, facilitate peer-to-peer support, and raise awareness for the 1 in 5 who learn differently.
Integrating Neurodiversity-Affirming Practices into Evidence-Based Treatment for Moderate to Severe CAS
https://www.apraxia-kids.org/webinar_library/integrating-neurodiversity-affirming-practices-into-evidence-based-treatment-for-moderate-to-severe-cas/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
EveryLife Foundation for Rare Diseases
https://everylifefoundation.org/programs/
202-697-RARE (7273)
The EveryLife Foundation for Rare Diseases is a nonprofit organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures. EveryDay Life offers patient programs, resources, events, and advocacy guidance.
NORD (National Organization for Rare Disorders)
https://rarediseases.org/living-with-a-rare-disease/
National Organization for Rare Disorders (NORD) advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies.
Selective Mutism Association (SMA)
https://www.selectivemutism.org/
We are people living with SM and people who have overcome SM. We are parents, treating professionals, physicians, educators, students, and more. What we all have in common is that we have witnessed or experienced for ourselves the pain of those suffering in silence and the frustration of not being able to help them. Through this online community, we have shared experiences and knowledge, fulfilling our mission to promote public awareness, to educate and support the expansion of research about selective mutism, and to speak out for anyone unable to speak for themselves.
Sensory Processing Disorders FAQ
https://parent.apraxia-kids.org/sensory-processing-disorders-faq/
Learn more from this article from the Apraxia Kids Parent Portal.
Fostering Friendships: Supporting Your Child With CAS on Their Social Journey
https://www.apraxia-kids.org/webinar_library/fostering-friendships-supporting-your-child-with-cas-on-their-social-journey/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
Helping Children with Communication Disorders Minimize Bullying
https://www.apraxia-kids.org/webinar_library/helping-children-with-communication-disorders-minimize-bullying-2/
Learn more from this free webinar in the Apraxia Kids Webinar Library.
What is Bullying? Are there Unique Risks for Children with Disabilities?
https://parent.apraxia-kids.org/bullying-prevention/
Learn more from this article from the Apraxia Kids Parent Portal.
Friends: The National Association of Young People Who Stutter
https://www.friendswhostutter.org/
friends@friendswhostutter.org
Friends: The National Association of Young People Who Stutter is a national nonprofit dedicated to providing support and education to young people who stutter, their families, and professionals, through annual conferences, one-day workshops, resources, groups, and outreach.
National Stuttering Association (NSA)
https://www.westutter.org/
The National Stuttering Association is dedicated to bringing hope and empowerment to children and adults who stutter, their families, and professionals, through support, education, advocacy, and research. They provide continued support, top-tier resources, and the latest information to all members of the stuttering community – PWS, professionals, families, and support team members.
Stuttering, Disfluency, and Childhood Apraxia of Speech
https://www.apraxia-kids.org/webinar_library/stuttering-disfluency-and-childhood-apraxia-of-speech/
Learn more from this paid webinar in the Apraxia Kids Webinar Library.
The Stuttering Foundation
https://www.stutteringhelp.org/
The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.
