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CASANA’s vision for the future, celebrating the holidays, and more.


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Apraxia Letter Logo

A Letter from our Executive Director    

Dear Friends:

As the Holiday Season approaches and this year comes to a close, I am filled with gratitude for each and everyone of you.  2017 brought many changes to CASANA and I am thrilled to lead this growing organization and share my vision for this coming year.

As we embark on this New Year, it is my goal to invest in our organization to serve more children and families all while bringing greater awareness to CAS.  Our mission will be at
the forefront of all that we do in 2018. As we work to reach more communities, our priority will remain:  to serve more children and families with the necessary support needed to make their journey just a little easier.

I am pleased to share just a few of our goals for 2018. Our staff continues to grow to better support our families and professional community. In addition, CASANA will be launching a new brand in 2018 which will position us to remain the leading organization for Childhood Apraxia of Speech.

In addition, we will:

  • Continue growth in our professional community. Since the opening of the Speech Center in September 2014, it was our intent to grow the number of trained apraxia specialists across the country making it easier for our families to receive a diagnosis.  The recent decision to close the CASANA Speech Center in Pittsburgh was made with thoughtful consideration.  We are confident that the network of apraxia specialist that continues to grow across North America will provide the same level of expertise you have come to expect from CASANA.  To date, 93 speech-language pathologists have graduated from our Intensive Training Institute.  In addition, there are seasoned apraxia specialists who have practiced for years prior to the implementation of the Boot Camp training. The combined presence of these professional specialists enables parents to secure expert evaluation and associated therapy services closer to home.
  • Increase research funding and participation. We will continue to grow our  Professional Advisory Council who support the research component of our organization, provide expert advice on curriculum development and advise on our website content as examples of their many valued contributions.  We will be investing $60,000 in CAS Research in the coming year with an intent to double this funding over the next 2 years.
  • Elevate the Walk for Apraxia as our nationwide signature event. The walks serve many purposes for our organization to include education, support, awareness and
    fundraising to further the mission of CASANA. Without the support of our wonderful and dedicated volunteers and the thousands of participants, these events would not be the success they are today.  Our goals for 2018 are to elevate these events in the communities in which they are held to louden our voice to every family impacted by CAS.  We will be
    launching new ways to support our volunteers and families all while growing these events to raise more awareness and increase our fundraising to serve more.
  •  Provide support to our families.  During this next year, we will continue to provide small grants for speech therapy for those families that might need a help with therapy costs along with our continued funding of speech therapy devices.   As we look to engage the
    philanthropic community, our goal will be to increase the level of support we can provide to families with the necessary tools needed to make therapy accessible.

With the continued support of each of you, along with the engagement of new partners, I believe we will accomplish many great things in 2018!

On behalf of myself, our dedicated staff and our Board of Directors, we wish each of you a wonderful Holiday Season and healthy New Year.

Many thanks for your support,

Angela Signature No Background.png

Angela Grimm

Executive Director



GT Princess Sofia

#GivingTuesday

 

At CASANA, we believe that
Every Child Deserves a Voice. With your support,
children like Sofia are able to get the help they need to receive appropriate
treatment.

This past week on #GivingTuesday, we asked you to give to kids with apraxia like Sofia. If you
missed it, you can still donate and
help children find their voices!

Ronda and Ashlynn

Apraxia Stars at the LA Walk

At the LA Walk to Talk event this past month, walkers were able to meet a very special guest. Ronda Rousey, famed MMA fighter, came to speak at the Walk about her experience growing up with apraxia. 

Actress Gage Golightly of MTV’s Teen Wolf was also there to inspire young apraxia stars. Like Rousey, the actress had apraxia as a child and came to Walk, to meet young apraxia stars, and to enjoy the day. You can read more about the day in this blog by SLP Mommy of Apraxia, Laura Smith.

The event was also attended by a celebrity within the apraxia community! Aly Taylor of the blog “Girl With a Funny Accent” shared her experience growing up with apraxia at the event.

We love to see so many faces showing up to the Walk for Apraxia!


 

 

Call for Conference Papers

Call for Presentations

CASANA is pleased to announce we are offering opportunities to qualified persons to make presentations regarding childhood apraxia of speech and related and/or associated issues to speech-language pathologists, parents, and others (lay persons, educators, etc.) at the 2018 National Conference on Childhood Apraxia of Speech. The Conference will be held July 12-14 in Charlotte, NC. The deadline to submit your paper is January 5th, 2018. Please visit our application page for more information!


Read More

 

CASANA SLP Directory

What is the SLP Directory?

At CASANA, we know how very challenging it can be to locate a speech-language pathologist that has an understanding of this complex speech disorder.  For that reason, we have created an online directory in which we have screened the listed professionals in a multi-step process. The SLPs listed are either based in the USA or Canada. We are grateful to the Once Upon a Time Foundation for their funding and collaboration for this initiative!

SEARCH DIRECTORY NOW!

 

Get Listed Today!

Our goal is to have as many qualified SLPs register as possible. If you are a Speech-Language Pathologist, please go to our application portal to begin the registration process. If you know an SLP who should register, please forward them this email to let them know about the registry!

GET LISTED!


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Celebrating 10 Years of the Walk for Apraxia

The 10th annual Walk for Apraxia season officially ended on a beautiful day in Phoenix, Arizona on November 12. This year we walked with 14,000 supporters across the US and Guelph, Canada. To date, we’ve raised $930,000. We do it all to celebrate over 1100 Apraxia Stars whose hard work and determination inspire us daily. None of this is possible without the efforts of our volunteer Walk Coordinators who work tirelessly to organize events in honor of their family members, students, and clients.

All walk websites will remain open for donations until December 28th, 2017. Honor your favorite Apraxia Star or Walk Coordinator with a gift to your local walk today!

BOOTCAMP

Do You Have What it Takes?

 

Boot Camp Returns! The Childhood Apraxia of Speech Intensive Training Institute (Apraxia Boot Camp) was designed as a means by which our organization could strategically identify and intensively train qualified and interested speech-language pathologists in order to boost their clinical expertise in the diagnosis and treatment of CAS. It is intended to provide experienced professionals an opportunity to become “master” clinicians who can then serve as local/regional experts and potential mentors for other clinicians. Sound like you? Go to our application page to read more about how to apply!

 



A Moment of Thanks

From our Vice President of Programs, David Hammer

Dave first corner

I have been blessed in my life to have been able to be in the field of Speech-Language Pathology which has afforded me the opportunity to touch the lives of children and their families who struggle with CAS and related issues.  In this time of thanks reflection, I want to thank two men who were the most important part of my professional journey – Dr Rich Culatta who inspired me to go into this profession when I was headed to be a pharmacist and took his stimulating freshman studies class at Pitt – Dr Tom Campbell, a member of our esteemed Professional Advisory Council, who entrusted Luke and Sharon with me 23 years ago which forever changed my professional passion from stuttering to CAS.  I have tried to emulate these great mentors throughout my 38 years in the field.  As I sit at my desk and look at the notes of thanks posted on my bulletin board, I hope that these notes reflect even to a small degree that I have achieved this:

  • “Thank you for taking the time to take my phone call and listen to me today.”
  • “Thank you for the opportunity to shadow you. I have taken with me so much knowledge…”
  • “Thank you so much for giving us insight on some complex cases (at the National Conference).”
  • “I want to thank you (and the CASANA staff) for making my time working with you…a beautiful and wonderful experience.”

Dave Hammer

VP of Programs



Together our Voices Grow Stronger:
Join us for Holiday Opportunities!

Ornament Grab Bag

Ornament Grab Bag

Display your support for CASANA with a selection of three holiday ornaments from previous years! Each unique 3-ornament bundle will be available for a limited time only and could include hand-finished pewter, cast aluminum, painted ceramic, or hand-forged bronze decorations from years past.

holiday card

Cards for a Cause

We are partnering with Picaboo to raise money for Childhood Apraxia of Speech! If you order your holiday cards from our link, CASANA receives half of the profits. Additionally, if you use the code CARDS4CAUSES you can get 50% off your purchase!

 

amazon smile

Help While You Shop

As the holidays approach, why not raise money for CASANA while also checking all the items off your holiday shopping list? With Amazon Smile, you can do both! Every time you go to order something from Amazon, do it through CASANA’s Amazon Smile link.

 



Carlson Family Check

Paying it Forward

Cooper Gives Back

When Cooper’s speech therapist suggested that Cooper might
have Childhood Apraxia of Speech, his mother was at a loss. Afraid and in
denial, she went home and took to Google. CASANA was the first site that came
up. “I cried reading about the disorder,” she wrote. “I knew we were up in for
an uphill battle.”

Now, years later, Cooper has found his voice.
Last month, he and his family did something amazing with the help of the Colten
Cowell Foundation – they gave back to help other children just like Cooper.

Read the rest of the story on our website!


1.31.18

Application Due for the Intensive Training Institute

Do you have what it takes to be a Boot Camper?

1.5.18

Deadline to Submit Papers for the 2018 National Conference

The 2018 National Conference on Childhood Apraxia of Speech will be on July 12-14, 2018 in the Sheraton Charlotte Hotel in Charlotte, NC.


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1.) You’re an awesome member of our Apraxia Community or
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(412) 343-7102
casana@apraxia-kids.org

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