Research Participation

This study is attempting to learn more about the strengths and challenges children experience when they have a genetic diagnosis, including changes in the following genes: FOXP1, FOXP2, SETBP1 and KAT6A.

The purpose of this study is to determine if starting therapy at very early ages can minimize or prevent speech & language problems in children with classic galactosemia.

This study trains parents of children aged birth to 4 ½ years with Classic Galactosemia, how to support their child’s communication and motor skills.

This study is wanting to record English-speaking children ages 8 to 17 years of age who have difficulty producing the /s/ sound in words and sentences to help develop home practice computer programs.

The researchers are seeking children with CAS ages 7-17 and their caregivers to participate in focus groups and interviews to discuss how CAS has affected their lives in order to create appropriate survey questions.

This study is seeking 2-5 year old children with a CAS diagnosis to participate in a study at New York University to determine how intensive treatment changes their speech movements

This study is looking at the effectiveness of Dynamic therapy on children with CAS. It will provide an assessment, SLP training and therapy for young children.

This online questionnaire study seeks caregivers who have a child aged up to 18 years who has CAS focusing on: (1) CAS diagnosis, (2) speech therapy received by the child, and (3) family preferences for speech therapy.

This study is looking for Australian parents/caregivers to participate in focus groups exploring your experiences with obtaining a CAS diagnosis, accessing speech therapy, and perceptions of met and unmet needs.

This study is looking for parents and their child aged 5-10 years old to participate in a study researching the benefits of receiving specific feedback about speech and language therapy sessions.

Parents can join a registry at Brigham Young University’s Child Language Lab and be notified of new research studies that target children aged 3-15 years of age who have difficulty with speech and language.