20 Feb Father and Son on the Apraxia Kids Board
Lou & Jaime LaVecchia first attended an Apraxia Kids National Conference in 2014 on a scholarship provided by Apraxia Kids. They were looking for answers to help their son Jayden who was four at the time and had been recently diagnosed with severe apraxia of speech. The conference provided education, direction, and hope that Jayden was capable of more, despite his parents being told he may never have intelligible speech.
Following the conference Lou & Jaime advocated for Jayden to ensure he received the appropriate services within the school setting. Jayden quickly began to make progress in school and in a couple of years “graduated” from speech. Jayden quickly stepped up as a role model and leader for kids with apraxia.
Jayden began speaking at local walks for apraxia in the tri-state area. He provided a message to kids beginning their apraxia journey; not to give up and to work hard. Jayden’s story resonated with families looking for hope. In 2019 Jayden spoke at the Apraxia Kids National Conference in front of over 500 attendees. Jayden’s hard work had paid off and built a foundation of excellent work ethic that is evident today. Jayden works as a bicycle builder and mechanic at a local bike shop and at a hardware store.
In 2025 Jayden applied for a spot on the new Apraxia Kids Junior Board. Since joining the junior board Jayden has continued his advocacy and providing a voice for kids. The Apraxia Kids Junior Board is composed of young adults who have a connection to CAS. Their unique and personal experience brings a new perspective to Apraxia Kids. Many of the Junior Board members were told they might not ever speak, but thanks to resources like Apraxia Kids these incredible young adults are using their voices to inspire hope and help create a world where the next generation is better prepared to learn about apraxia.
Lou LaVecchia rejoined the Board in 2025 after completing his first term. Although on separate boards with their own workgroups, together they are working to ensure Apraxia Kids direction. Helping professionals and families find the resources they need while looking to innovate. Board members provide direction and oversight to ensure the organization is following its mission.
Lou & Jaime LaVecchia first attended an Apraxia Kids National Conference in 2014 on a scholarship provided by Apraxia Kids. They were looking for answers to help their son Jayden who was four at the time and had been recently diagnosed with severe apraxia of speech. The conference provided education, direction, and hope that Jayden was capable of more, despite his parents being told he may never have intelligible speech.
Following the conference Lou & Jaime advocated for Jayden to ensure he received the appropriate services within the school setting. Jayden quickly began to make progress in school and in a couple of years “graduated” from speech. Jayden quickly stepped up as a role model and leader for kids with apraxia.
Jayden began speaking at local walks for apraxia in the tri-state area. He provided a message to kids beginning their apraxia journey; not to give up and to work hard. Jayden’s story resonated with families looking for hope. In 2019 Jayden spoke at the Apraxia Kids National Conference in front of over 500 attendees. Jayden’s hard work had paid off and built a foundation of excellent work ethic that is evident today. Jayden works as a bicycle builder and mechanic at a local bike shop and at a hardware store.
In 2025 Jayden applied for a spot on the new Apraxia Kids Junior Board. Since joining the junior board Jayden has continued his advocacy and providing a voice for kids. The Apraxia Kids Junior Board is composed of young adults who have a connection to CAS. Their unique and personal experience brings a new perspective to Apraxia Kids. Many of the Junior Board members were told they might not ever speak, but thanks to resources like Apraxia Kids these incredible young adults are using their voices to inspire hope and help create a world where the next generation is better prepared to learn about apraxia.
Lou LaVecchia rejoined the Board in 2025 after completing his first term. Although on separate boards with their own workgroups, together they are working to ensure Apraxia Kids direction. Helping professionals and families find the resources they need while looking to innovate. Board members provide direction and oversight to ensure the organization is following its mission.
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