Apraxia News – May 23, 2013

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The Latest News, Events, and Information on or Related to Childhood Apraxia of Speech


May 23, 2013


Thanks to all who participated in the first Apraxia Awareness Day on May 14th!  By all accounts, it was a huge success!  Highlights included thousands of people sharing information about apraxia on Facebook and Twitter; newstories, blogs and media coverage; an Apraxia Hall of Fame demonstrating the Face of Apraxia in hundreds of children’s lives; schools both sharing and commemorating the day through lessons and activities; and numerous states and the U.S. Congress providing official recognition and proclamations. See below for just some of those highlights:

Apraxia Awareness Day News Coverage – Below are some of the media and TV coverage of the day.  More spots aired, however, they are not available online.  All the families involved did an exceptional job!!

Apraxia Awareness Day promotes awareness of Childhood Apraxia of Speech (West Virginia – The State Journal)

Mason Adams attends speech therapy on National Apraxia Awareness Day (Sandusky, Ohio

Sandusky Register)

Family managing daughter’s unusual speech disorder (Kitchner, Ontario, The Record.com)

After Boy’s Trouble Speaking, Family Spreading Awareness (Rhode Island WPRI 12)

Children with Rare Speech Disorder Get A Voice Today – (South Carolina WCBD TV)

Local Family Speaks Out About Apraxia – (West Virginia WCHS TV)

Parents bring awareness to rare neurological disorder – (Milwaukee,WI; TMJ4 Positively Milwaukee program)

Giving Our Kids A Voice Through Parent Blogs

Many parents took to the blogs in order to raise apraxia awareness and to share what it meant to them and to their child. Their writing is quite moving and inspiring.  We’ve tried to capture those writings on a Pinterest Board so that readers can go to one online place to get connected with them. (Please note: for technical reason’s some blogs would not “pin” so our apologies if any blog is not included!) Apraxia Awareness Day Parent Blog Writing Pinterest Board




Registration is well under way for the 2013 National Conference on CAS. The conference will offer lectures and information focusing, not just on children’s speech skills, but also their overall language development, educational and developmental needs. The variety of sessions offered will meet the learning needs of each individual who wishes to attend. The conference will be held in Denver, Colorado at the Hyatt Regency Denver Tech Center, July 11-13, 2013. CASANA’s annual conference features national experts who will discuss all aspects of apraxia of speech in children, including assessment, treatment methods, education, and more.

The conference is appropriate for parents, family members, speech-language pathologists, general education and special education administrators and teachers, school psychologists, paraprofessionals, preschool administrators and teachers, higher education faculty, and professional development staff.

1.2 ASHA CE credits will be offered for speech-language pathologists in attendance.

The CASANA staff is planning some exciting extra activities this year, including;

• Special session for siblings conducted by apraxia expert David W. Hammer at no extra cost

• Join the CASANA Staff for some relaxation and libation at the Rt. 25 Taphouse and Kitchen

• Poker night (just for the guys)

• Canvas and Cocktails (just for the ladies)

• Movie night and S ’mores (for families with children)

Information on additional conference activities will be available online soon.  Read more about the National Conference.

***A very special thank you goes out to Highmark and Morrison & Forester who funded full or partial scholarships for over 30 parents!



Do you know which two of the United States boasts the highest number of scheduled Walks for Children with Apraxia this year? The Answer:

  • Ohio (Greater Cleveland Area, Akron, Central Ohio, Cincinnati & Middletown), and
  • New York (Saratoga Springs, Fulton, Cobleskill, Lowville, and Staten Island).

Don’t miss out on the fun or the awesome green official Walk for Apraxia T-shirt!  Register now at a walk near you.

NEW APRAXIA BOOK RELEASED – Anything But Silent: A Families Journey Through Childhood Apraxia of Speech

The newest book on Childhood Apraxia of Speech is selling like crazy! “What would you go through as a parent to give your child the power of speech?” This is the phrase that catches you as you read the back cover of the new book Anything But Silent.  If you are a parent, you are thinking.. “I would go to the ends of the earth for this child.”  And what if you are a child struggling just to be understood?  What is going on for you?  Well this book, by Kathy and Kate Hennessy, has it all.  It is shared from the perspective of both parent and child.  CASANA is very proud to be offering Anything But Silent for sale in our Apraxia-KIDS store.  Author Kathy Hennessy is none other than CASANA’s incredible Director of Education and mom of two young adult children who grew up with apraxia.  Kate is her 23 year old daughter who shares an insider’s view of what may go on in the mind of a youngster diagnosed with apraxia. Order your copy here!

View a list of professionals that support CASANA and our apraxia cause! Click here to view complete list of those professionals: Apraxia-KIDS.org – CASANA Professional Friends Directory   


June 1, 2013

Raleigh, NC Walk for Children with Apraxia of Speech

Idaho Walk for Children with Apraxia of Speech

June 8, 2013

Colorado Springs 3k/5k Fun Run/Walk for Children with Apraxia

Montana and Northern Wyoming Walk for Children with Apraxia of Speech

June 10, 2013

10:00 AM – CASANA Webinar: “Clinical Grand Rounds: Mixed Phonological Disorder/Childhood Apraxia of Speech

June 11, 2013

7:00 PM – CASANA Webinar: “Clinical Grand Rounds: Mixed Phonological Disorder/Childhood Apraxia of Speech

Click here to view more educational and awareness events

Ways to Raise Apraxia Awareness!

Apraxia Awareness Silver Necklace

Check out some of our newest Apraxia Awareness products available in the Apraxia-KIDS Store!  Purchase yours today!

CASANA | 416 Lincoln Ave, 2nd floor | Pittsburgh, PA 15209 | www.apraxia-KIDS.org