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Apraxia’s Silent Star

Sue Pascale

You live in a world of silence,
Yet have so much to say.
You always tell us stories explaining your entire day.

Many do not understand when their questions go unanswered,
They do not realize speech has yet to be mastered.

Days at the park are tough when you want to ask them to play,
Most times they don’t understand and tend to walk away.

A child with so much to share,
If only people could take a moment to care.

Sometimes a bellyache or maybe you are just tired,
The way you have learned to express yourself simply must be admired.

Children say the darndest things, at least that is what they say,
I am sure you have all the same thoughts the words just have a delay.

I was told once you started talking I would wish you hadn’t due to all you would say,
I promise when your ready to speak you can talk with me all day.

Silent words you show me with sign language everyday,
Looking to communicate in some other way.

You continue to face the challenge of expressing your wants and needs,
We have laid out all the groundwork before us and planted all of our seeds.

This world can at times be very unkind,
Especially if others believe your behind.

Fortunately your heart is made of solid gold,
You’re strong, brave and have much to behold.

We love you just as you are,
To us you are a shining star.

Unlike any other child we have ever known,
For you are a child of our very own.

One day soon the words will begin to flow,
Then you can tell us all the things that we did not know.

Until that day we will educate all,
So that other children are not made to feel small.

Your eyes are like windows to the silence and fear,
When often frustration can cause you a tear.

But at that moment we give you a kiss and a hug,
Sometimes when you need us our pants feel a tug.

Tomorrow is another day for your words to grow,
This is a promise and something we all know.

[Lillie Rose is our beautiful two and a half year old daughter. Lillie has been pre-diagnosed with Apraxia. Lillie has advanced by leaps and bounds with her therapy but continues to struggle. We hope continued research, funding and education will help children like Lillie.

Dave and Sue Pascale
Royersford, PA]