Support, Awareness, and Information
Awareness Walks – Each year Apraxia Kids supports volunteers throughout North America in the planning of local Walk for Children with Apraxia of Speech® events. The Walk for Children with Apraxia of Speech® raises local awareness in the community for children affected by CAS and raises critical funds for Apraxia Kids’ programs and research.
Support Groups – Apraxia Kids maintains an up-to-date listing of support groups that are submitted to us with information including their meeting times and contact information.
iPads for Apraxia – Initiated in 2011, the iPads for Apraxia project provides iPads and protective cases for children with a primary speech/language diagnosis of apraxia from moderate to low income families throughout North America. The tablet and app technology is used to enable more engaging speech practice at home, motivation, and for some children, communication apps enables the iPad to serve as augmentative or assistive technology – a “talker” for the child to communicate. Applications are typically available on the Apraxia-KIDS website in September or October. Priorities are given to older children with significant apraxia, children who are severely affected, and those from communities involved in the Walk for Children with Apraxia of Speech®. Others may also be awarded iPads, however, when all other factors are equal, selections will be made based on the stated priorities.
CASANA Apraxia Therapy Grants – Apraxia Kids has created a program in partnership with Small Steps in Speech to provide small speech therapy grants for children with apraxia from families with financial need. All aspects of the project are administered by Small Steps in Speech. For more information on applications, please visit Small Steps in Speech website.
Apraxia-KIDS Store – The Apraxia-KIDS online store includes items that raise awareness and support for apraxia as well as Educational DVDs, books, and much more! Visit our Apraxia-KIDS Store to view all of our products.
Apraxia Information – The Apraxia-KIDS website is the largest most respected and trusted source of information on Childhood Apraxia of Speech (CAS) worldwide. CASANA assures that the latest information on all aspects of CAS is available to the public in an understandable form. Its online Library includes multiple areas from diagnosis, treatment, school issues, other associated conditions, insurance issues, and research. Additionally, there are Apraxia Start Guides for both families and professionals which serve as a great source of basic information on CAS. An online calendar shares CASANA related apraxia educational and awareness events as well as those made available by others.
Each year, Apraxia Kids plans and conducts:
- Seven or eight regional one-day educational workshops throughout the United States and Canada
- Monthly webinars on various apraxia related topics
- A three-day National Conference attended by 350 or more parents and professionals concerned for children with CAS
An additional special program that Apraxia Kids operates is called the Childhood Apraxia of Speech (CAS) Intensive Training Institute. This program is one in which speech-language pathologists apply for admission and a small group is selected to undergo intensive training with faculty experts in CAS. Additionally, the enrollees are mentored for six months by their faculty mentor and must pass both a test and a case study review in order to “graduate.” This program is serving to build more in-depth expertise in the diagnosis and treatment of CAS than can be accomplished in a one or two day workshop. So far, Apraxia Kids has graduated 40 speech-language pathologists from the program and recognizes them for Advanced Training and Clinical Expertise in CAS. Click here to see a listing of our Intensive Training Institute Graduates. We are planning our next Institute for the summer of 2014. Applications will become available in early January 2014.
Apraxia Kids Research Grant Program – Noting the lack of funding for apraxia research, Apraxia Kids’ Board of Director’s created the Apraxia Research Program in 2007 in order to further published, high-quality research into treatment for Childhood Apraxia of Speech (CAS) and expanded funding to other clinical areas such as identification and diagnosis of CAS in 2011. Grants are competitive and selected by an external expert panel of reviewers using standards similar to the National Institute of Health research grants. Apraxia Kids grants serve as funding for “pilot” studies, enabling researchers to then use their data to pursue larger grants. Additionally, there is a heavy emphasis on the grants resulting in publication in professional journals so that the research becomes part of the professional literature on CAS. Aside from some sporadic funding from the federal NIH/NIDCD, there is no source of apraxia research funding in the United States aside from Apraxia Kids’ program. When grant funds are available, a Request for Applications (RFA) appears on the Apraxia-KIDS website.
Other Apraxia Research Support – Apraxia Kids has a long and steadfast history providing support for researchers into apraxia. Beginning with the first Childhood Apraxia of Speech Research Symposium in 2002 and continuing to the most recent symposium in 2013, Apraxia Kids creates opportunities to bring together the community of scientists working on this issue, and helps to encourage and support new or more junior researchers to get connected with established ones. Additionally, researchers worldwide count on Apraxia Kids’ support to share subject recruitment information when they are beginning research projects and in need of children and/or families to participate. Finally, Apraxia Kids has established a “bottoms up” approach to childhood apraxia of speech research through the creation of the Apraxia Research Registry. Families voluntarily enter comprehensive information about their child into the registry – a privacy protected database (the same system as used by major hospitals such as the Cleveland Clinic and the National Cancer Institutes). As more and more families complete the registry, researchers will be able to gain even more assistance in identification of possible subjects for their research and/or to observe trends in the “pooled” data created by the multitude of children of various ages represented in the registry. Click here to learn more about the Apraxia Research Registry.