[Note: Below are the preliminary results of the apraxia parent survey research done this summer, via the Listserv, by doctoral student Pat Lohman at Ohio University. Pat was gracious to send us her preliminary findings. Results of the survey will be used to prepare professional articles and presentations. This information belongs to Pat, thus do not reprint or repost this information. She has given permission to me for posting. Thanks to everyone who helped Pat out. Sharon Gretz]
- 136 families from all regions of the United States, Canada, Great Britain, New Zealand, and Mexico completed the survey.
- Children ranged in age from 20 months to 14 years of age, which means that some children are being diagnosed early.
- There were 98 boys and 38 girls diagnosed with Apraxia = 72% boys, which correlates well with the national survey of 3 boys to one girl.
- Developmental Apraxia of Speech was the most widely given diagnosis, followed by Dyspraxia and Developmental Verbal Apraxia.
- The most reported accompanying problems included: motor problems, sensory integration dysfunction, dysarthria and hypotonia. There was a wide range of other accompanying problems. Apraxia of speech rarely was reported to be an isolated problem.
- The majority of parents rated their children’s level of apraxia to be Moderately Severe or Severe and struggling to speak, or getting frustrated when speaking.
- Parents reported their children receive individual therapy privately — or both privately and in a school setting. Only 5 children receive group therapy exclusively.
- The therapy approach most widely used is repeating a model (look and listen), closely followed by the oral-motor exercises approach. Approximately one-third of the children use sign language to communicate.
- The biggest challenge parents have encountered regarding their child’s apraxia was: Insurance coverage issues and locating an SLP with adequate knowledge regarding Apraxia.
- Overwhelmingly, the most helpful information about apraxia was obtained from the Apraxia-Kids Listserv. Very few parents listed their SLP as providing the most helpful information.
I would like to thank all parents, grandparents and caregivers of children with apraxia who responded to our survey. The information you have provided is very important and helpful to those of us in the field of speech-language pathology.
Sincerely, Patricia Lohman